(BPT) - Advances in technology have shaped the way we communicate and have enabled the modern-day patient to easily connect with medical experts, patient advocates and others living with their disease. Through computers, handheld devices like tablets and smart phones, and social media, patients are also able to instantly access credible information – something that could not have been imagined until recently. Digital tools and online resources have become especially beneficial for people living with rare health conditions, such as sarcomas or malignant tumors that are often difficult to diagnose.
Sarcoma Awareness Month was recently commemorated in the United States and is an opportune time to raise awareness among those people unfamiliar with sarcomas, while also empowering patients living with the disease to be their own best advocates. One way patients can self-advocate is by using available digital resources to obtain information about their condition.
For example, for patients with gastrointestinal stromal tumors (GIST), a rare, life-threatening sarcoma that is primarily found in the gastrointestinal (GI) track and most often found in the stomach or small intestine, the journey to a correct diagnosis may take years as symptoms are not present in earlier stages of the disease. Once diagnosed, the journey has just begun, and patients should understand how to best manage their disease. Patients with GIST can use online resources to take charge of their health by following these steps:
If you have any technical difficulties, either with your username and password or with the payment options, please contact us by e-mail at email@example.com