(BPT) - Epilepsy is the nation’s fourth most common neurological disorder, yet public understanding of it is limited – so much so that federal agencies and nonprofit organizations recently asked the Institute of Medicine (IOM) to study and report on the public health needs of people living with epilepsy. The recommendations the IOM put forth in the report, Epilepsy Across the Spectrum: Promoting Health and Understanding, include a call for expanding educational opportunities and resources.
Lennox-Gastaut Syndrome (LGS) is a type of epilepsy that usually appears before the age of 8 and accounts for up to 4 percent of all childhood epilepsy cases. It is characterized by multiple seizure types and impairment of cognitive function and presents caregivers with unique challenges.
LivingwithLGS.com, a website made possible through the support of Eisai Inc., aims to provide educational resources, such as those called for in the IOM report. “Transitions of Care,” a new educational video for caregivers of patients with LGS, recently launched on LivingwithLGS.com.
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